Hi, I have End Stage Kidney Disease (ESKD) due to Polycystic Kidney Disease. I was initially diagnosed at the age of 18 and many years later, at the age of 33, in
September 2011, I started dialysis. I initially started on CAPD (Continuous Ambulatory Peritoneal Dialysis – 4 times a day) and then went on APD (Automated Peritoneal Dialysis – night machine) 16 months later.
I am lucky however, to have received a kidney transplant recently, having received the
“miracle” call of the gift of life from Beaumont Hospital, Dublin.
Since I started this diary on 28th October 2012, I have been documenting how I have got on being on dialysis and how I have coped with the many highs and lows along the way.
I decided to set up www.kidneyfailuremystory.com
because I know when I was told I had to start dialysis, I had so many questions, I felt at times I had no one to ask. And while the PD Nurses were very good to me and while I was able to ask them any question, I always went home and had more questions. And
believe me, I am still learning and I still have many questions. I should say at this stage, that I owe a huge degree of gratitude to the PD Nurses in Cork University Hospital, who thought me how to do dialysis and gave me the courage and confidence to
do it myself. I would also like to thank my previous Dialysis Consultant and my new Transplant Consultant. They have been so supportive and just know the right things to say and keep me calm. I will be forever grateful to them and will never forget this kindness.
I'm hoping that my journey and experience with kidney disease
and the things I learn and have learnt along the way, will be of help to someone else. My Dad also has Kidney Disease and has battled with it for the last 30 years. He has had 2 transplants and is waiting on his 3rd. When I see his courage and sheer
determination, that is, without a doubt, what keeps me going.
By all means don't hesitate to ask me any questions or leave any comments you may have. If you would like to leave a comment but not on my home page please email me - firstname.lastname@example.org
Thanks for listening.......
GIVE THE GIFT OF LIFE - FREETEXT DONOR TO 50050